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Useful organisations

This section gives details of other organisations.

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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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A

AVM Support UK

Provide various support services for people affected by Arteriovenous Malformation (AVM).

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APIL (Association of Personal Injury Lawyers)

11 Castle Quay
Castle Boulevard
Nottingham
NG7 1FW
UK

APIL (the Association of Personal Injury Lawyers) was established in 1990 by a group of lawyers working on behalf of personal injury victims and now has over 5,000 members. It is an independent, not for profit organisation providing accreditation to lawyers specialising in the area of personal injury law. Hold a directory of accredited solicitors.

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Aphasia Now

'Aphasia now' is a website started by an aphasia wanted to get in touch with like minded and other sufferers to learn more about the invisible disability.

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Association of Speech and Language Therapists in Independent Practice

Can supply details of therapists by region or specific condition.

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ARCOS - the Association for Rehabilitation of Communication and Oral Skills

ARCOS is a national charity. We work with children and adults who have communication and eating (swallowing) difficulties, their families, carers and others involved. ARCOS provides information, advice, practical help, specialist therapy training and other services not readily available elsewhere.

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B

Bicycle Helmet Initiative Trust

The Bicycle Helmet Initiative Trust is committed to saving young people's lives by promoting safe cycling and, in particular, the use of cycle helmets

Brain Tumour UK

Tower House
Latimer Park
Chesham, Bucks
HP5 1TU

Brain Tumour UK works to conquer brain tumours through research, education and support.

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Brain Injury Association of America

105 North Alfred Street
Alexandria
VA 22314
USA

  • Tel: 703 236 6666
  • Website: www.biausa.org
  • Fax: 703 236 6001
  • Family helpline: 800 4444 6443

Aims to create a better future through brain injury prevention, research, education and advocacy.

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Brain and Spine Foundation

Research, education and information. Booklets on a wide range of neurological conditions and symptoms and an online discussion forum. Helpline is staffed by neuroscience nurses.

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Brain Injury Wales

Brain Injury Wales is a professional service offering independent brain injury case management.

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Brake - the road safety charity
  • Tel: 01484 559909
  • Fax: 01484 559983
  • Helpline: 0845 603 8570
  • Email: helpline@brake.org.uk
  • Website: www.brake.org.uk

Brake, the national road safety charity, works to stop death and injury on the roads and to care for people affected by road crashes. Brake also runs educational initiatives and campaigns for tougher laws against dangerous drivers. Brake produces a range of support literature for people bereaved and injured at these particularly devastating times. This literature is distributed by the police forces following every fatal crash and often after a serious injury. Brake also runs a helpline, through which its highly trained operators can support families and friends following the aftermath of a road crash. The helpline provides both emotional support as well as practical information on the many procedures that follow a death on the road. The helpline also acts as a signposting service directing callers to counselling services, trauma therapists and self-help groups.

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Brain and Spinal Injury Charity (BASIC)

The Neurocare centre
554 Eccles New Road
Salford
Manchester
M5 5AP

BASIC provides a specialist resource at the Neurocare Centre for people and their families in crisis following a traumatic brain injury or neurological diagnosis.

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Brain Injury Rehabilitation Trust (BIRT)


60 Queen Street Normanton
Wakefield
WF6 2BU

  • Tel: 01924 896 100 (admin centre)
  • Fax: 01924 899 264
  • Website: www.birt.co.uk
  • E-mail: director@birt.co.uk

The Brain Injury Rehabilitation Trust (BIRT) is a leading European provider of specialist brain injury rehabilitation, helping people regain lost skills, recover social independence and rebuild their lives following acquired brain injury. Twelve residential rehabilitation units, located throughout England, offer clinically led assessment and rehabilitation services, excellent facilities, many of them modern and purpose built. Community based support, including twenty supported houses and home support packages, is also available. BIRT is a division of The Disabilities Trust and the means by which it provides its brain injury services

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Brain Tree Training

PO Box 79
Leatherhead
KT23 4YT

Produce home-based cognitive rehabilitation courses for those with acquired neurological injuries.

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Brainwave Centre ltd (Brainwave Centre for rehabilitation and development)

Marsh lane
Huntworth gate
Bridgewater
Somerset
TA6 6LQ

Design home-based programmes of rehabilitation for children involving both physical and cognitive techniques.

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British Association of Brain Injury Case Managers (BABICM)

PO Box 1919
Sheffield
S7 2DW

BABICM is a professional association that was established in 1996 to promote the development of case management in the field of acquired brain injury.

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British Dietetic Association

The British Dietetic Association, established in 1936, is the professional association for dietitians. Its aims are to:

  • advance the science and practice of dietetics and associated subjects
  • promote training and education in the science and practice of dietetics and associated subjects
  • regulate the relations between dietitians and their employer through the BDA Trade Union.

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British Institute for Brain Injured Children (BIBIC)

BIBIC is a national charity offering practical help to families caring for children with conditions such as autism, cerebral palsy, Down's syndrome, developmental delay, traumatic and acquired brain injury and specific learning difficulties such as attention deficits, hyperactivity disorder, dyslexia and dyspraxia.

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British Society of Rehabilitation Medicine (BSRM)

The Society encourages doctors in all clinical specialties to be involved in education and research into the management of disability. Membership of the BSRM is open to all registered medical practitioners interested and concerned with its objectives.

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C

Carers UK

Carers UK is a membership organisation of carers, led by carers for carers.

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Caring with Confidence

Caring with Confidence is a FREE programme for carers. If you are looking after a friend or relative, Caring with Confidence can help and support you to make a positive difference to your life and that of the person you care for.

Child Brain Injury Trust (CBIT)

Child Brain Injury Trust
Unit 1, The Great Barn
Baynards Green Farm
Nr Bicester, Oxfordshire
OX27 7SG

The Child Brain Injury Trust (CBIT) supports children, young people and families affected by an acquired brain injury, to enable them to achieve their potential.

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(The) Children's Trust, Tadworth

The Children's Trust is a national charity providing residential rehabilitation, community services, information and support to children and young people with acquired brain injury and their families.

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Chartered Society of Physiotherapy

14 Bedford Row
London
WC1 4ED

The Chartered Society of Physiotherapy is the professional, educational and trade union body for the country's 45,000 chartered physiotherapists, physiotherapy students and assistants. It aims to support its members and help them to provide the highest standards of patient care.

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Challenging Behaviour Foundation

32 Twydall Lane
Gillingham
Kent
ME8 6HX

Provide an info service, fact sheets, support network to improve the lives and conditions of people with learning disabilities and challenging behaviour, their immediate family and carers.

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Connect - the communication disability network

Connect - the communication disability network is a charity for people living with aphasia (communication disability) following stroke, accident or tumour.

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Criminal Injuries Compensation Authority (CICA)
  • Tel: 0141 331 2726
  • Helpline: 0800 358 3601
  • Website: www.cica.gov.uk
  • Fax: 0141 331 2287

The Criminal Injuries Compensation Authority administers the criminal injuries compensation scheme throughout England, Scotland and Wales. We pay compensation to people who have been the victim of a violent crime.

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CRUSE Bereavement care

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Care Choices ltd

Valley Court
Croyden
Herts
SG8 0HF

Care Choices Ltd offers a free residential/care home search service. The company has a database of care homes, nursing homes, elderly accommodation and similar establishments throughout the UK.

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Contact a Family

Contact a Family
209-211 City Road
London
EC1V 1JN

  • Tel: 020 7608 8700
  • Web: www.cafamily.org.uk
  • Fax: 020 7608 8701
  • Helpline: 0808 808 3555 (10am-4pm, Mon-Fri)
  • Textphone: 0808 808 3556

Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their health condition. We also enable parents to get in contact with other families, both on a local and national basis. Each year we reach at least 250,000 families.

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CO Awareness

CO-Awareness is an organisation that supports the many victims of Carbon Monoxide (CO) poisoning and Toxic Combustion (TC) poisoning, their families and friends.

Counselling Directory

Connecting you with professional support - find a counsellor or psychotherapist near you.

Commission for Social Care Inspection

Looking for a care home? Get free, independent reports on the quality of your local homes and care services to help you make an informed choice.

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D

Different Strokes

9 Canon Harnett Court
Wolverton Mill
Milton Keynes
MK12 5NF

This is a new charity for young stroke survivors aiming to provide access to physio and exercise, information and counselling and advice on further education and job opportunities.

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Disabled Living Foundation (DLF)

380-384 Harrow Road
London
W9 2HU

  • Tel: 020 7289 6111
  • Website: www.dlf.org.uk
  • Helpline: 0845 130 9177
  • Email: info@dlf.org.uk
  • Text phone: 020 7432 8009

DLF are the leading source of information on disability equipment. They aim to give advice and information on any aspect of disability presenting problems through providing an information service and answering queries by telephone and letter. Maintain a large equipment display area, which may be visited by appointment.

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Disability Alliance Education and Research Association

Universal house
88-89 Wentworth Street
London
E1 7SA

Aims to break the link between poverty and disability.

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Disability Rights Commission

Incorporated into Equality and Human Rights Comission. See E

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E

Expert Witness Directory

See also: British Psychological Society (BPS)

Equality and Human Rights Commission

The Equality and Human Rights Commission champions equality and human rights for all, working to eliminate discrimination, reduce inequality, protect human rights and to build good relations, ensuring that everyone has a fair chance to participate in society.

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F

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G

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H

Headway Ireland

Headway Ireland
101 Parnell street
Dublin 1

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I

Independent Living Fund

Independent Living Funds
PO Box 7525
Nottingham
NG2 4ZT

  • Tel: 0845 601 8815
  • Website: www.ilf.org.uk
  • Fax: 0115 945 0945
  • Email: client.service@ilf.org.uk

The funds were set up as a national resource dedicated to the financial support of disabled people enabling them to choose to live in the community rather than residential care.

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J

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L

Law Society

113 Chancery lane
London
WC2A 1PL

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Learnet

A Resource for Teachers, Clinicians, Parents, and Students by the Brain Injury Association of New York State. Contains a range of tutorials covering different aspects of brain injury. Whilst the materials are aimed at students and young people, they are also applicable to adults.

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M

Macmillan Cancer Support

Macmillan Cancer Support improves the lives of people affected by cancer. One in three of us will get cancer. We are all affected by cancer. We can all help. We are Macmillan.

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Meningitis Trust

Fern House
Bath Road
Stroud
Gloucestershire
GL5 3TJ

The Meningitis Trust is the UK's longest established meningitis charity. It helps around 20,000 people each year through its unique range of professional services and community support; giving vital support to those who have been affected by this life-changing disease. With as many as 500,000 people living in the UK who have had either viral or bacterial meningitis and up to one adult in every four knowing of someone who has had meningitis, the charity's ongoing work is much-needed.

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Momentum

Support people to remain active citizens in their communities through the provision of mainstream employment and personal support services for a wide range of clients in the following areas: brain injury, mental health, employment and training, job retention, pan-disability, care and supported living and community rehabilitation.

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N

Neurological Alliance

The Neurological Alliance
Stroke House
240 City Road,
London
EC1V 2PR

The Neurological Alliance is a wide range of neurological charities which have come together to make life better for people in the UK with a neurological condition. Our aims are to raise awareness of neurological conditions and their impact; inform and influence policy makers about the needs of people with neurological conditions; secure the highest standards of service and improved care for people with neurological conditions; promote research and the dissemination of information about neurological conditions.

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NHS Direct / NHS 24 / NHS Direct Wales

Medical advice from qualified nurses.

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O

Office of the Public Guardian

The Office of the Public Guardian supports and promotes decision making for those who lack capacity or would like to plan for their future, within the framework of the Mental Capacity Act 2005.

Office of the Public Guardian (Scotland)

The Office of the Public Guardian has a general function to supervise those individuals who have been appointed to manage the financial or property affairs of an adult who lacks the capacity to do so for themselves. The office is based in Falkirk and covers the whole of Scotland

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P

Parkinson's Disease Society (PDS)

215 Vauxhall Bridge road
London
SW1V 1EJ

Aims to help patients and their relatives with problems arising from parkinson's disease, to collect and dissemenate information on the disease, to encourage and provide funds for research into the disease.

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Princess Royal Trust for Carers

The Princess Royal Trust for Carers is the largest provider of comprehensive carers support services in the UK.

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Q

Queen Elizabeth's Foundation for disabled people

QEF works with people living with physical and learning disabilities or acquired brain injuries to gain new skills and increase independence.

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R

Relate

Herbert Gray Collgeg
Little Church Street
Rugby
Warwickshire
CV21 3AP

Aims to support marriage and family life. Relate has a range of literature and can refer to local branches for individual counselling services.

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Relatives and Residents Association

Provides information and support about carehomes.

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RoadPeace

UK national charity provides emotional and practical support to road crash victims (bereaved and injured) and runs a Helpline which is open from 9am-9pm 7 days a week. Campaign for road safety.

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Royal Association for Disability And Rehabilitation (RADAR)

12 City forum
250 City Road
London
EC1V 8AF

  • Tel: 020 7250 3222
  • Website: www.radar.org.uk
  • Fax: 020 7250 0212
  • Email: radar@radar.org.uk
  • Minicom: 0207 250 4119

RADAR is a co-ordinating body with over 500 members associations. It acts as a pressure group on central and local government. RADAR is concerned with every aspect of disibility, but is particularly involved with access, education, employment, holidays, housing, mobility and social services.

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Royal National Institute for the Blind (RNIB)

Supporting people with sight problems

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S

Stroke Association

Stroke House
240 City Road
London
EC1V 2PR

Aims to carry out a programme of research, health, education, rehabilitation, welfare, and counselling services, publishing books, posters and leaflets and organising conferences.

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Samantha Dickson Brain Tumour Trust

Since 1996, the charity has become the largest dedicated brain tumour charity in the UK with the highest level of laboratory based brain tumour research in the country. The Trust offers support to patients diagnosed with a brain tumour as well as their families and/or carers.

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SCOPE

6 Market Road
London
N7 9PW

Supporting people with Cerebral Palsy

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Speakability

1 Royal Street
Londan
SE1 7LL

Advice line for people with dysphasia (loss of language following stroke or head injury), their families and professionals. Advice on accessing services, benefits, holidays, equipment and computer technology. Also gives advice on self-help groups and speech therapy.

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T

Trust-Ed

Provide educational services for young people with acquired brain injuries

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U

United Kingdom Acquired Brain Injury Forum (UKABIF)

Aims to promote understanding of all aspects of Acquired Brain Injury and to provide expert input to policy makers, service providers and general public.

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V

Vitalise

Vitalise provides respite care and short breaks for disabled people and carers.

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X

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Y

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Z

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Headway is not responsible for the content of external websites. Links may open in a new window or tab.

If you spot any mistakes, or know of any useful organisations that do not have entries on this directory, please let us know.

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