Useful organisations

The directory of useful organisations is divided into categories that may be useful to people looking for information and support on different aspects of brain injury.

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Browse organisations by category

37 organisations across 11 categories

Brain injury & related conditions 6 organisations
Children & young people 3 organisations
Carers & families 2 organisations
Mental health & wellbeing 3 organisations
Money, benefits & legal 3 organisations
Mobility & independence 2 organisations
Accessible holidays 1 organisation
Acquired brain injury 13 organisations
  • United Kingdom Acquired Brain Injury Forum (UKABIF)

    Aims to promote understanding of all aspects of Acquired Brain Injury and to provide expert input to policy makers, service providers and general public. Website contains a directory of brain injury rehabilitation services.


  • The Brain Tumour Charity

    The Brain Tumour Charity is the UK's largest dedicated brain tumour charity. We fund scientific and clinical research into brain tumours and offer support and information to those affected, whilst raising awareness and influencing policy.


  • Stroke Association (1)

    The Stroke Association is the only UK wide charity solely concerned with combating stroke in people of all ages. The Stroke Association funds research into prevention, treatment and better methods of rehabilitation; campaigns to increase knowledge of stroke and improve stroke services; and act as a voice for everyone affected by stroke. Stroke survivors and family members are supported directly through its Life After Stroke Service. The Stroke Association also provides a range of informational publications, a stroke helpline and an information service for anyone affected by stroke.


  • Acquired Brain Injury Managed Clinical Network (ABIMCN)

    The National Managed Clinical Network (NMCM) for Acquired Brain Injury (ABI) is a Scottish National Network established by the National Services Division (NSD) in 2007. Its aim is to improve access to and the quality of services for children and adults with Acquired Brain Injury (ABI).

  • Anchor Point

    Anchor Point is an unincorporated association working to improve the lives of families after Acquired Brain Injury(ABI).

    Anchor Point brings together academics, clinicians, researchers, professionals and relatives of ABI survivors with the aim of placing family at the heart of clinical care, governmental policy, and academic research.

  • AVM Support UK

    Provide various support services for people affected by Arteriovenous Malformation (AVM).

  • Brain and Spine Foundation

    Research, education and information. Booklets on a wide range of neurological conditions and symptoms and an online discussion forum. Helpline is staffed by neuroscience nurses.

  • Brain and Spinal Injury Charity (BASIC)

    BASIC provides a specialist resource at the Neurocare Centre for people and their families in crisis following a traumatic brain injury or neurological diagnosis.

  • Brain Injury Research

    Brain tumours kill more children and adults under the age of 40 than any other cancer, yet historically just 1% of the national spend on cancer research has been allocated to this devastating disease.

    Brain Tumour Research is determined to change this.

    We are the only national charity in the UK focused on finding a cure for all types of brain tumours through campaigning to increase the national investment in brain tumour research to £35 million per year, while fundraising to create a network of seven sustainable Brain Tumour Research Centres of Excellence across the UK.

  • Chest Heart and Stroke Scotland (CHSS)

    CHSS improves the quality of life for people in Scotland affected by chest, heart and stroke illness, through medical research, influencing public policy, advice and information and support in the community.

  • IIH UK

    IIH UK aim to provide the best possible support network for IIH sufferers and their families, to raise awareness and understanding of IIH within the general public and medical community and to champion and support medical research into finding a cure for the condition.


  • Meningitis Now

  • Shine

    Shine is a charity dedicated to supporting individuals and families who face the challenges arising from spina bifida and hydrocephalus. We provide specialist support to anyone living with these conditions, as well as to parents, families, carers and professional health and social care staff. With a community of 75,000 individuals, families, friends, and professionals, Shine also provides a platform for members to share achievements, challenges, and information on living with spina bifida and/or hydrocephalus


Online professional directories 10 organisations
Supporting carers: counselling directories 8 organisations
Carers' organisations 4 organisations