Headway online brain injury communities

Through our social media channels and HealthUnlocked discussion forum, we give you the chance to connect online with other people who are affected by brain injury.

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Our communities are primarily for people with a brain injury, their families and carers, but anyone is welcome to join in the conversation.

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Looking to connect?

“This has been the first day I've been involved in the forum and I have to say thank you. For a long time I have felt isolated and coping with everything on my own. But today I have chatted with some great people.”

- angelfish28, HealthUnlocked member

On the Headway HealthUnlocked community, you can:

  • Discuss: In the discussion forum, you can post a new question, reply to someone else's question, or just read through the forum to find information that might help you.

  • Share: Talk about your experiences of brain injury, and support others by commenting on their posts.

  • Engage: Help keep the community active by engaging with other users and sharing your own knowledge and experiences.

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Join the Headway HealthUnlocked community

Community safety and rules

Disclaimer

Content on the Headway HealthUnlocked community and social network channels does not replace the relationship between you and your doctors or other healthcare professionals, or the advice you receive from them. It also does not replace our free helpline service, which offers an opportunity to discuss your concerns in confidence with our trained staff.

The comments and information placed in this community are purely the views of the members and are not those of Headway - the brain injury association.

The mention in the community of any products, alternative/complimentary therapies or treatments does not constitute a professional recommendation from Headway - the brain injury association.

House rules

These house rules apply to the Headway HealthUnlocked community and to any posts and comments on our social media channels. 

  • Join in! To help keep the community active, we encourage users to post blogs and questions, and comment on other peoples' posts. However, it's also fine if you'd rather just read other posts on the site.

  • Respect other community members. In other words, be nice! It's OK to have a debate and share opinions on our community, but make sure you're always polite and don't insult, intimidate or harass people.

  • Be aware - Headway's community is a public forum! You are responsible for what you post on our site. You must not post anything illegal or offensive.

  • Stay safe. We want you to feel safe when talking about your experiences of brain injury on our community. To ensure this, please don't give out your personal details such as address and phone number. Don't talk about your daily movements, such as where you'll be at a specific time and date. Be careful when discussing details of family and friends - they may not want their personal stories online. Do not respond to, and immediately report, any posts or private messages that ask for personal details or money.

  • Don't name and shame. While it's OK to talk about experiences you've had, be they good or bad, we ask that members don't dedicate posts to naming and shaming services or individuals.

  • Don't advertise products or services. It's fine to discuss your experiences of particular products and services, but the Headway community is for personal use and must not be used for commercial purposes to advertise products and services. This includes text on your profile page, which should not include the name and/or details of the company you work for.

  • Don't post links to research studies/surveys. Headway receives a high volume of requests to post details of brain injury research. Please contact us first to discuss how we can help.

  • Report abuse. Use the Report link next to any posts you think are inappropriate and one of the moderators from HealthUnlocked or Headway will review it and, if necessary, remove it.

  • Respect copyright. You are welcome to upload images to our blogs, but make sure you have the permission of the original creator and/or the people who appear in the image before doing so. If you copy text from another source, make sure you say where you got it from.

  • Don't post conspiracy theories. This forum is for discussion of brain injury and the issues that may arise from it. While you are of course entitled to your opinion, it is not a place to discuss unfounded and un-evidenced conspiracy theories, and all such posts will be removed. We recommend checking all online information with a professional source such as your doctor, the NHS or fact-checking websites.

Guidance for social networks

If you are not currently a member of Facebook, Instagram, X or Bluesky, you will need to create your own profile before you can join our page. On YouTube, you will need to create an account to subscribe to our videos.

Headway UK strongly urges people who are thinking of joining any of these sites to carefully consider their privacy settings.

All social networks have a range of privacy controls that allow users to dictate how much personal information is available to can be seen by other users.

Please review the Social media: how to use it safely guide from the National Cyber Security Centre for more information.

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