Improving life after brain injury Need to talk? 0808 800 2244

Join
Home About brain injury Further information Research Communication problems

The impact of cognitiv...

The impact of cognitive-communication problems on families Main Image

The impact of cognitive-communication problems on families

Tue 09 Mar 2021

Research looks at the impact of cognitive-communication difficulties on families after traumatic brain injury

Primary Objective

To identify how families experience cognitive-communication difficulties following Traumatic Brain Injury (TBI). Experiences of information, training and support for managing communication changes were also explored. 

Research Design

Qualitative focus group methodology using thematic analysis. 

Method

15 family members of individuals with cognitive-communication difficulties following severe TBI participated in the study; four parents, six spouses, three siblings and two offspring. The majority of participants were female (80%, n = 12), with a mean age of 51 (range 19–71). Four focus groups were held with family members at 0–12 months, 12–36 months and 36+ months post-injury. The data were transcribed verbatim and analyzed using NVIVO 12.

Results

Cognitive-communication difficulties were found to impact upon family functioning and psychological well-being for several years post-injury. Changes to social cognition, insight and the “filter switch” of the person following TBI were key areas of distress. Participants highlighted the need for information about communication changes to be provided at several time points post-injury. The need for peer support from other families with experience of cognitive-communication difficulties was also identified.

Conclusion

Cognitive-communication difficulties impact upon family functioning for many years following injury with families continuing to have support needs for communication well beyond the acute rehabilitation stage.

Reference

Grayson, L., Brady, M.C., Togher, L., & Ali, M. (2020). The impact of cognitive-communication difficulties following traumatic brain injury on the family; a qualitative, focus group study. Brain Injury, 35(1), 15-25. 

Back

Share this page

Headway - the brain injury association is registered with the Charity Commission for England and Wales (Charity no. 1025852) and the Office of the Scottish Regulator (Charity no. SC 039992). Headway is a company limited by guarantee, registered in England no. 2346893.

© Copyright Headway 2021  -  Site designed and developed by MEDIAmaker